The Bendrigg Blog

Rare Disease Film Festival Awards

Rare Disease UK Hosts The First Rare Film Festival Awards Helping To Raise Awareness For Rare Diseases.

We were grateful to receive funding from the Scottish Power Foundation in 2019 towards our Adventure For All Project – Promoting, Sharing, Inspiring. Part of the project included funds for us to create several short films to help promote the power of adventure activities for people with disabilities.

One of the films focused on Pip Rowlands, who first came to Bendrigg when she was just 5 years old. The story takes us on an incredible journey through Pip’s climbing journey and the impact that it has had on her day to day life, living with a rare condition called DDX3X.

Category : Best Agency Charity Collaboration

Film – Climbing : The Ripple Effect

We Won!

We are thrilled to announce that our film won in the category and we couldn’t be happier. We couldn’t have done it without the amazing Adamedia who we worked alongside to create the film, and of course the stars of the show Pip, Alix, Clare & Gary, and Pip’s climbing coach Kara.

Funding from Scottish Power Foundation was topped up by the BMC which meant we could create this film which helps to not only raise awareness for Pip’s rare condition DDX3X but also will hopefully inspire more people to try new activities and perhaps even take up climbing as a new hobby!

People’s Choice Award

There is a people’s choice award now open for you to cast your vote for your favourite film.

Click here to watch all the shortlisted videos and place your vote!

Congratulations

Congratulations to everyone who entered a film, the competition was tough and we thought all of the videos shown were amazing in their own right.

 

Check out the rest of the films in our Adventure For All Series on our YouTube channel.

 

 

The Power Of Corporate Partnership

Q8 Takeover Day

Guest Blog by Q8 Corporate Volunteers

Hey everyone, Q8 Corporate academy & Impact International are in the Lake District today helping out our friends at Bendrigg Trust, a charity that offers services for disabled people – their mission is to promote inclusion, encourage independence and build self-confidence through the safe provision of adventurous activities.

We’ve learnt some amazing skills on this epic sunny day and have enjoyed meeting all the special guests, amazing staff and exploring the stunning 15 acre grounds!

We have loads to show and share with you today. Not only have we heard all about their work but we’re not leaving without a bang and have been working hard, to help contribute something to this fantastic charity.

Check out the short video we created below :

 

 

 

 

We’d like to leave you with this quote by Winston Churchill

“We make a living by what we get, But we make a life by what we give”

After a fantastic day, this is our biggest takeaway. It is great to give back!

 

 

You too can make a huge impact at Bendrigg Trust find out how you can help here.

 

 

Kids to Adults Shows 2020

We had such a great time at the Kidz2Adultz North event last November that we’ve decided to exhibit at the North, Middle & Scotland Events this year!

Here’s what you need to know about kidz 2 adultz :

What it Kidz 2 Adultz?

Disabled Living has an enviable reputation of organising the very prestigious Kidz to Adultz event since 2001 and now hold five of the largest FREE UK exhibitions totally dedicated to children and young adults up to 25 years with disabilities and additional needs, their parents, carers and all the professionals who support and work with them.

Kidz to Adultz Exhibitions

Have you thought about visiting a Kidz to Adultz exhibition but you're not sure what to expect? Take a look at this short video! ????For more information: https://www.kidzexhibitions.co.uk/kidz-north/#kidztoadultz

Posted by Kidz to Adultz Exhibitions on Thursday, 3 October 2019

 

  • 100 – 180 exhibitors with the most up to date advice & information on mobility, funding, seating, beds, communication, sensory, education, housing, employment, transport, sports, leisure & much more!
  • Seminars take place alongside the exhibition covering a wide range of topics and interests to families and carers of children with disabilities and the professionals who work with them.

Where and When Do The Events Take Place?

Middle

Ericsson Exhibition Hall, Coventry

Wednesday 4th March 2020

9:30am – 4:30pm

South

Farnborough International Exhibition Centre

Thursday 7th May 2020

9:30am – 4:30pm

Wales & West

Newport International Conference Centre

Thursday 2nd July 2020

9:30am – 4:30pm

Scotland

Royal Highland Centre, Edinburgh

Thursday 10th September

9:30am – 4:30pm

North

Eventcity Manchester

Thursday 12th November

9:30am – 4:30pm

Is it Free to attend?

Yes, there are no costs to attend and you can order your tickets on the Kidz exhibitions website by clicking on each of the events above.

We hope to see you there!

Bendrigg will be there with a smile as always ready to answer any questions about our accessible outdoor adventure courses so don’t forget to come and see us.

 

Read more here >>>> about what we do


 

Shaping The Future Together

Bendrigg Engagement Day

On Thursday 9th January 2020 Bendrigg Trust held it’s very first Engagement Day, and sorry to disappoint but it was not the down on one knee, she said yes kind of engagement day. It was however an absolutely brilliant gathering of our stakeholders including participants, group leaders, supporters, trustees and staff. The aim of the day was to bring all of these people together, who have a different perspective of Bendrigg to brainstorm, share feedback and come up with ideas which will help us to shape our vision for Bendrigg moving forwards.

We kept our Mission and Values at the core of the discussions and had break out groups to focus on the following areas :

  • Environment
  • Innovation
  • Keeping The Magic Alive 
  • Financial Sustainability
  • Who Are We For
  • Community Engagement
  • Cultural Journey

By focusing our discussions around these key areas for development, we are now able to develop future plans, both short and long term, based on all of the collaborative feedback.

       


Feedback from the day

Over the years I have attended many, many events similar to the one you held yesterday, however I have to say, I have never attended one with such passion, such commitment or such enthusiasm. The fact that people had travelled from so far and wide to be there showed how committed people are to supporting you and the organisation moving forward.  The facilitator, John, was excellent, I really felt that he understood what you were trying to achieve and his passion to get the most from everyone was clear from the outset.

Over the many years of bringing groups to Bendrigg (sometimes 2 or 3 times per year), we have brought some children and young people so poorly, so severely disabled that their time at Bendrigg truly was a “once in a lifetime experience”.  Sadly, some of those children / young people are no longer with us.  I have felt privileged to have been able to offer a break to those young people at Bendrigg with support from our team.  It has been a real gift knowing that we helped to shape those memories and experiences for that child / young person and their family and that even when that child has passed away the family have those photos and DVD’s of our stays showing their child with huge smiles across their faces and their eyes lit up as they flew across the sports hall on the big swing, took a leap of faith on the zip wire or quietly relaxed in the multi-sensory room. Truly priceless.

Yesterday for me showed the true “magic” of Bendrigg, from the huge hug from Rex as we arrived in the (somewhat soggy) car park, him remembering our names and asking about my son! Walking is us to main door under his umbrella. Bumping into Jo in the dining room to be hugged again (a real hug because someone wants you to know they mean it) and the conversation between us flowing so immediately and so easily that I was left feeling like it was only a day since we last spoke. Seeing many members of staff – Ed, Mel, Vic, Jennifer, Libby and Val and all of them remembering my name, chatting like people I see daily and remembering details of young people or activities etc when we have been at Bendrigg.

Bendrigg for me always feels magical.

Kelly Piper, Leisure For All Manager


Thank you

We’d like to say a great big thank you to all those who attended, some who travelled a considerable distance and took time out of their working week to come and be a part of the day.

A fantastic day was had by all and the love for Bendrigg and passion shown by everyone who attended is what made it very special. Our management team and trustees will be meeting to move the ideas forward and we will be sharing updates on this in the coming months.

A huge thank you also to the wonderful John Matthews from Impact International for facilitating an exceptional day, which will no doubt play a huge part in shaping the future of our Charity.

 

To keep up to date with all of our latest news and events, you can subscribe to The Bendrigg Buzz our monthly newsletter.

 


 

Tutors Of The Future

Bendrigg Trust Trainee Tutors

This year, Bendrigg Trust have taken on 2 new Trainee Tutors….

Introducing Abigail & Dominic!

   

At the start of their trainee-ship at Bendrigg, they have spent some time out in the beautiful Lake District along with our level 2 trainees, Beth & Simon who we are thrilled to be keeping on for a 2nd year of the trainee programme.

The group have been out to Ullswater Canoeing, Caving at County Pot, Ease Gill & exploring the stunning Jacks Rake in the stunning Langdale.

   

 

We are lucky to have such a wonderful group of trainees who are dedicated to becoming Tutors of the Future!

 

 

Would you like the opportunity to work alongside our groups? We take on volunteers throughout the year to assist the tutorial team and work alongside our groups. It’s a fantastic way to build your skills and gain experience working in the outdoors… find out more here.

 


 

 

Need Help With Funding? We’ve Got You Covered!

Bendrigg Trust Funding Pack

We recognise that some of our service users often need financial support to be able to come away on a trip to Bendrigg.

With statistics like these, we felt it was important that we do something to help. Which is why we have created a digital funding pack.

What is the funding pack?

The pack is made up of relevant grant making trusts and funders, who specifically fund costs towards holidays and carers for disabled people. This means that if you’d like to come on a trip to Bendrigg, but are struggling to afford the cost, you can simply request a copy of the pack, find a relevant funder and apply to them for financial support.

Who is it for?

It has been created to be used by all our service user groups. That includes :

  • Schools
  • Organisations
  • Individuals
  • Charities
  • Families

There are then further options within each of these sections to help you find the most relevant funders that could help you with the cost towards a trip to Bendrigg.

How can I get a copy of the pack?

All you need to do is ask! Simply call us on 01539 723766 or send us a request via our contact page HERE

Are you a family with a disabled child? We recently wrote a blog piece highlighting some of the services that are available to you…. Check it out here.

 

Be Burns Aware

Burn & Scald accidents can be horrific and very painful. They not only cause physical injuries but can often result in psychological trauma. This can be particularly true for young people who often struggle with body image and self confidence. 

Support For Burns Survivors

The Scottish Burned Children’s Club is an organisation that support burns survivors. They came on a residential to Bendrigg this year with the aim to :

  • Bring burns survivors together so they don’t feel alone in what they are going through.
  • Provide opportunities to make new friends and relax in an environment where they feel safe and comfortable.
  • Through trying new activities and facing fears they overcome things independently and with the support of others, building confidence and trust in relationships with the people around them.
  • Burns survivors can often have intensive periods of medical treatment, operations and other procedures. An annual camp is a great chance for everyone to let loose and have fun again!

Our latest video in the Adventure For All Series follows the Scottish Burned Children’s Club on their week residential at Bendrigg. It’s amazing to see all the participants growing in confidence as they face their fears and take on new challenges, and is such a positive step forward to helping them rebuild their self esteem. They also had such a lot of fun, experiencing all that a residential and the great outdoors has to offer!

I don’t think our burns are what make us unique, it’s just who we are. It’s a mark that’s part of who we are and where we came from – Craig, SBCC

 


Burns Awareness and Prevention

Did You Know…

Prevention and good first aid are key to reducing the number of burns and scalds occurring in the UK every single day.

  • 7071 Children were seriously burned or scalded in 2018
  • Young children and the elderly are most vulnerable
  • The majority of accidents occur as a result of an accident that could easily be prevented
  • Scalds from Hot Drinks are the most common burn injury to children
  • Electric Hobs, Hair Straighteners, Bowl Spills, Irons & Fireworks are some of the other common causes of serious burns and scalds.

Take Care This Festive Season…

Watching fireworks is great fun. But taking care is important especially as children are more likely to get hurt by fireworks than adults. Here are some simple things that can help to reduce the risk to your family.

Sparkler Safety

Children under five are too young to safely hold a sparkler and don’t really understand why they might be dangerous. Avoid giving them one to hold.

Babies or Children can wriggle in your arms and reach out unexpectedly. Avoid holding a baby or child when you have a sparkler in your hand.

Children over five will still need you to supervise them when they use sparklers. It’s safest if they wear gloves when they’re holding them. They might seem like “fireworks lite” but sparkles can reach a temperature of 2000 degrees Celsius! Have a bucket of water handy to put them in so that no-one can pick up a hot one off the ground. Teach them not to wave sparklers near anyone else or run with them.

Remember… Always hold sparklers at arms length & wear gloves when handling them, follow the age guidance above and always put sparklers in a bucket of water when they go out so that no-one an pick a hot one off the ground.

Firework Safety

Most firework injuries happen at family parties or private displays, so understanding the dangers of fireworks can prevent injuries and in some cases save lives.

  • Avoid wearing loose or potentially flammable clothing
  • Always wear gloves when handling sparklers and fireworks
  • Always have buckets of water ready to put out small fires or to cool sparklers
  • Make sure children are supervised around fireworks and bonfires
  • Never drink alcohol if you’re setting off fireworks
  • Keep animals indoors and close curtains – frightened animals running around can cause accidents
  • Only purchase fireworks that are sold by a registered seller
  • Follow instructions carefully and light fireworks at arm’s length
  • Ensure spectators stand back from bonfires and fireworks
  • Never go back to a firework that has been lit – even if it hasn’t gone off

First Aid Advice – The 3 C’s

  1. COOL the burn with a running cold tap water for 20 minutes and remove all clothing and jewellery (unless it is melted or firmly stuck to the wound)
  2. CALL for help 999
  3. COVER with clingfilm or a sterile non-fluffy dressing or cloth. Making sure the injured person is kept warm.

Don’t… burst blisters or apply creams or lotions. 

For more detailed information about the treatment and prevention of burns and scalds please visit the NHS website : www.nhs.uk/conditions/burns-and-scalds/

 


Other Sources of Information

Information for this blog post has been written with guidance from the following sources.

Changing Faces www.changingfaces.org.uk 

Scottish Burned Children’s Club www.theburnsclub.org.uk,

Children’s Burns Trust www.cbtrust.org.uk

CAPT (Child Accident Prevention Trust) www.capt.org.uk

NHS website : www.nhs.co.uk

 

Why not check out our other Adventure For All Videos? Click here

Or find out more about our residential courses

 

Making Memories Together As A Family

The latest video in our Adventure for All series follows the lovely Bancroft Family. We asked them to share “a life in the day of the Bancrofts” and captured their recent residential to Bendrigg with PHAB families.

“For anyone with 3 young boys, life can be tough, but when you have a child with additional needs, things can become much more of a challenge” – Lisa, Mum

Archie, aged 11, has a rare genetic condition called Cri Du Chat syndrome. Learning difficulties, poor muscle tone & a high-pitched cat like tone of voice are amongst a few of the symptoms caused by this condition.

Over time, Lisa (Mum) and Matt (Dad), have built up a great network of support through attending various clubs, activities and Cri Du Chat conferences which has helped them to feel less isolated and build confidence as a family.

 

 

Phab Clubs

Phab has been providing inclusive opportunities for disabled and non-disabled people of all ages since 1957.  There are around 150 Phab Clubs across England and Wales, some meeting weekly, where people can enjoy each other’s company and take part in a wide range of activities and social events such as crafts, discos, sport, music, games, theatre visits or trips out.

Phab also provides a programme of exciting Residential Holiday Projects for families, children, young people and young adults, many of which are held at Bendrigg Trust. Whilst being away from home, either for a weekend or a week, everyone can make the most of the outdoor activities on offer, build their self-esteem, confidence and independence, make friends and have a huge amount of fun!

To find out more about the amazing Phab Holiday Projects or to see where your nearest Phab Club is then please go to our website www.phab.org.uk or call Rebecca Hargreaves (National Projects Manager) on 01254 824784

 

Riding For The Disabled

Riding For The Disabled (RDA) is a nationwide project which aims to enrich lives through horses. Run entirely by volunteers, RDA provides therapy, fitness, skills development and opportunities for achievement through horse and carriage rides.

They welcome clients with physical and learning disabilities and autism, and there are no age restrictions. With centres located all across the UK you can use the search tool by clicking on their website below to find a group that’s local to you.

www.rda.org.uk/rda-groups

 

Tom Cat Trikes

In the video you may remember seeing Archie smiling from ear to ear, riding along on a fabulous Tom Cat Trike. Going out on the bikes is a great activity for all the family, but for the Bancroft’s and probably many other families, purchasing an adaptive trike is only possible with some financial support.

The Tom Cat Trikes have a great page on their website which tells you about funding organisations that may be able to help towards the cost of a Tom Cat Trike.

www.tomcatuk.org/support-with-funding

Bendrigg Trust Family Weekends

It was wonderful to see all of the families from PHAB enjoying taking park in our adventure activities TOGETHER. Did you know that we run open family weekends where families with a disabled member (Parent or/and child) can come to Bendrigg for a fully inclusive weekend of FUN!

Check out the dates & prices for our upcoming family weekends here : www.bendrigg.org.uk/what-we-do/family-courses/

 

 

 

Check out the other videos from our Adventure For All series here : 

www.bendrigg.org.uk/news-events/adventure-for-all/

 

 

 

Sedbergh Gives Back

Today was Sedbergh Gives Back Day – where over 500 pupils from the local schools volunteer at various local charities to give back!

We had a group of 40 pupils from Powell House attend and help Ed our maintenance man with all sorts of maintenance and grounds work including developing an accessible wheelchair obstacle course.

The weather didn’t put them off and each individual worked extremely hard to achieve a great deal in just 8 hours.

 

We have just 1 full time maintenance man onsite at Bendrigg, for him to have accomplished all that you have today, would have taken him weeks. Volunteering really does make a huge difference to our small charity and is very much appreciated”

Nick Liley, Bendrigg Principal

 

We also received a beautiful Christmas Wreath from the pupils at Robertson House which is making Bendrigg look very festive!

 

 

Thank you to all of the amazing pupils who have volunteered at local charities today, it’s with these acts of kindness, that small charities like us can make huge progress in such a short space of time, you should all be extremely proud of yourselves!

 

Want to get involved with volunteering for Bendrigg? Click here to find out more.

 

 

The Big Give Christmas Challenge

Give The Gift Of Adventure

Help us to raise £12,000 during the 2019 Big Give Christmas Challenge! By donating, you’ll enable more people with disabilities to access an adventure holiday of a lifetime.

What is the Big Give Christmas Challenge?

The challenge starts at midday on Tuesday 3rd December and ends at midday on Tuesday 10th of December – so we have just 7 days to raise our ambitious target of £12,000. The special thing about the challenge is that all donations given during the time frame & via the big give website, are matched, meaning your donation is DOUBLED and so is the IMPACT for our beneficiaries.

How will my donation make an impact?

This year all funds raised through the Bendrigg Big Give will go towards The Bendrigg Subsidy Fund. This fund enables socially and economically underprivileged people with disabilities to benefit from the ‘Bendrigg Experience’. Without this financial aid, our participants would simply not be able to experience these life-changing adventures.

The pupils from Wilson Stuart School came on a residential to Bendrigg earlier this year. They were only able to afford their visit after receiving financial support from the Bendrigg Subsidy Fund. You can see what it meant to them to experience the adventures at Bendrigg in the short video below.

 

“The whole experience was life changing for our students. I cannot express how amazing this residential was. The students have tried so many amazing activities and experienced what it is like to spend time away from family and carers, many of them for the first time. Independence is at the forefront of what we do at school and Bendrigg Trust advances the opportunities for all our students to try new things.” Teacher, Wilson Stuart

By donating in the Big Give Christmas Challenge where your donation will be DOUBLED – you’ll be enabling even more people to access adventure.

How can I donate?

In order for your donation to be doubled you must donate via the Bendrigg Big Give Christmas Challenge Link : bit.ly/BigGiveCC20

You must also make sure you donate between midday on Tuesday 3rd December and midday on Tuesday 10th of December when the challenge ends.

Please, donate today and help to give more people with disabilities the experience of a lifetime!

****UPDATE BIG GIVE CHRISTMAS CHALLENGE 2019

We are thrilled to announce that as of 12 o’clock on Tuesday 10th December, we have not only hit our target of £12,000 but with your generosity we’ve absolutely SMASHED it raising a grand total of £17,618 with gift aid that’s over £18,500!

We want to say a huge thank you to everyone who has donated and supported us throughout the challenge, your donations will enable people who would not have been able to afford to, a chance to have an adventure of a lifetime here at Bendrigg.

 

 

 

 

Want to know more about the impact of your donation? Click here to read our 2018 impact report.